Madison's Hope

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Madison's Story

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My daughter Madison was a unexpected miracle in my life.I had had many complications in the past concerning carrying a baby to full term. I had lost five babies prior to her,four to miscarriage and one was born premature at twenty four weeks and passed away. When I found out I was pregnant with Madison I was scared to loose another. I found an excellent doctor who specialized in high risk pregnancy who assured everything would be okay. My first wall to climb was a blood test to check to see if I would require a RhoGAM shot. I am rh negative which means that my body may produce antibodies that will destroy the red blood cells in your unborn baby.Learn more here about RH testing.After my blood test the doctors concluded I did not need a RhoGAM shot. They then tested my progesterone level which I do not make enough of during pregnancy.Progesterone is a steroid hormone that helps maintain pregnancy.Learn more here.They discovered mine was dangerously low and prescribed an progesterone suppository that raised the hormones levels.At twenty four weeks my doctor decided that placing a cervical cerclage inside me was the next step.The procedure sounds more complicated then it really is and not as painful as one would imagine.A Cervical Cerclage is treatment for cervical incompetence, in which the cervix is sewn closed during pregnancy.Learn more here. Once I recieved the cerclage I decided to leave my job and stay home.My thoughts were to not jeporadize the pregnancy considering at the time I was employeed by an agency for adults with developmental disabilities.My job was both stressful physically and mentally, something I did not need.Close to seven months my blood pressure started to sky rocket and I literally stayed at the hospital for hours at a time being monitored.My doctor put me on a medication called Hydralazine which made me useless.I was to take two 500mg a day and I felt like walking death.I called him up and explained to him I could not function on the prescribed medicine and he changed it to a medication called Atenolol which had little symptons.Learn about these medications here. At thirty two weeks I went in for a check up with my OB-GYN. I asked him for a ultrasound because the last one I had was right after the cerclage.I told him I wanted to see my daughter for reassurance and plus the fact I found her beautiful even then. During the ultrasound the nurse told me her heart was fine and appeared in good health. Once back in my room my doctor came in with a uncomfortable expression on his face.He asked me if the baby had been moving which I replied yes.He told me that we had a problem and I started crying before he ever even finished.He told me the amniotic fluid around her head was low and that we were going to have to induce labor that day.He asked me to disrobe and to get onto the exam table which I did,he told me he was going to remove my cerclage stitches.Mind you when these were put in I had been put to sleep.I asked him if he was going to numb me or anything and he told me it was unneccessary.Without a question it hurt and I nearly broke my then husbands fingers during the removal.After he was finished he told me to go to the hospital lobby and check in right then. I was petrified the fact she was early overwhelmed me.I was put in a room and was ran through the standard hospital procedures.They inserted a catheter and began to induce my labor.My doctor came in and checked the fetal heart rate monitor and told me that we would have to instead do an emergency csection because the baby's heart rate was too low.I was pushed into a room that resembled a kitchen and was freezing naked.I asked them for something besides the sheet I had over me and one of the nurses covered me in huge blankets.I had to have a spinal block for the procedure and I urge anyone who suffers prior back problems to avoid this type of medication.I literally did not stop having back pain for a year after the birth of my daughter.During the cesarean delivery I could not breathe and it felt as if I had a truck on my chest.I felt nothing from the bottom of my lungs down and was not able to see what they were doing due to a sheet in front of me.I waited to hear my daughter the entire time until she finally began crying.My doctor told me she was beautiful and I was allowed to kiss her.He told me she had to be taken to the nursery and for me to relax.I felt someone put a mask on my face and I was out.When I woke up I was in the recovery room fighting my body for feeling so they would allow me to go back to my room.When I finally was able to go back they brought my daughter in and I was not able to hold her which I did not understand.My doctor came in and told me my little girl was born weighing four pounds and six ounces and would have to be monitored.I stayed six days in the hospital with my daughter.They had placed a feeding tube in through her nose to make sure she was absorbing what she had eaten.I was mixing her food between formula and breast milk and she did not have any complications besides her weight.She was a very alert and healthy baby girl.When I was finally able to bring her home I was ecstatic and spent ninety-nine point nine percent of my day with her,the other percent was the rare occassion of sleep.Her first check up was exhausting for me and any parent can verify watching their child recieve shots isn't easy.She was gaining weight and I was told very healthy.I was also made aware that she would have to recieve Synagis shots to guard against RSV because she was premature.RSV(Respiratory syncytial virus)is the most common cause of bronchiolitis and pneumonia among infants and children under 1 year of age.I was told these infections are especially dangerous in babies who were born prematurely.To learn about RSV go here.Her insurance, which she had two at the time, neither would cover any cost for the shots.I called my mother who thankfully is a nurse who works in Pediatrics and told her of my problem.Madison's shots ended up costing close to one thousand a shot,thankfully Caremark a very helpful company helped with the shots cost.Madison was agitated after these shots but never was sick.She weighed over twelve pounds at four months and her doctor said that was a healthy weight for a premmie.She had been spitting up which he claimed was normal and otherwise was healthy.I laid her down to sleep one morning in her room.I was told that it would be fine for her to sleep in a room other then her father's and mine because we both had been sick that week.Her father worked third shift so my schedule and her's revolved around his so he could see her when he got home from work.I laid her down when him and I laid down to sleep,she was fine and smiling when I left her room.My husband woke me a few hours later and told me he had just changed and fed the baby and she had went back to sleep,he was heading out the door for work.I got out of bed shortly after and went towards her room to see if she was awake yet.When I leaned over her bassinet I realized something was very wrong.The color of my daughter was wrong and more over how she was sleeping was wrong.I had heard so many things concerning babies and how they should and should not sleep.I was told laying them on their backs if they were to spit up could cause them to drown.I was told laying them on their stomachs could cause them to smother as well as drown if they spit up.I always propped Madison on her side where she was neither way.What prompted me to do this was something that happened when she was close to a month old.I had went to check on her while she was taken a nap in her bassinet when I was cooking one evening.She was on her stomach in a ball towards the top of her bed and this scared me badly.When I found my daughter in April she was the color of a sheet of paper.She wasn't breathing and I couldn't feel her heartbeat.I began doing CPR then realized I had to get her to ER.I ran out the door to the neighbors to call EMS,we did not have a home phone at the time.My neighbor called 911 while I tried to get a response from my daughter.I wrapped her in a blanket the neighbor handed me and was rubbing her body and crying.When the EMS arrived the passenger literally ran to me arms outstretched for Madison and I met him halfway.They left with her in one ambulance and I rode to the hospital in the other.They called my husband at work from the ambulance while I was trying to answer the other EMS workers questions.Once at the hospital I sat alone in the waiting room and they could not tell me anything.I tried to recall numbers of people like my mother and family and came up with nothing.When my husband arrived they took us into a small room and shut the door.They told us they had tried for over an hour to revive our daughter and they were sorry but they could not,I hit the floor with him beside me and screamed.Not long after they told us of her passing a group of people entered the room and began asking us many questions.We were asked if we ever hurt our daughter,hit her,abused her.I was shocked by their questions and ultimately broken.A private investigator visited our home removing her bed linen among other things.I was told awhile afterwards that in this day and time a death of a child warrants these type of actions.I was asked to sign a document authorizing an autopsy and then I tried to call my mother.I never could finish telling her her grandaughter was gone I instead handed the phone to my brother.Once at home I laid in bed for hours sobbing until I fell asleep.Freinds of the family had moved her things from my room into hers in an attempt to help.It didn't.She was sent for an autopsy which prevented us from being able to bury her for a few days.The hell of choosing my daughters casket,grave plot and outfit for the showing was enough to leave me heartbroken.I wanted to know what had happened,I literally aggravated the hospital daily.During her funeral one of the men who I had never met came up to me at the casket.He pulled her little hat back showing me where they had cut her explaining to me not to let anyone remove her hat.I told him I was her mother and his eyes filled with tears apologizing that he did not mean for me to see that.Many family and friends paid their respects and many had a hard time entering the room.My mother was dying inside out and her cries alone literally made people turn from the door.Once Madison was buried I still had no cause why my beautiful baby girl was gone.Weeks we were made to wait for the autopsy results which were the longest of my life.When we recieved the results I sat in the car at the mailbox for close to an hour with the envelope crying.I began reading throughout the document which detailed things noone should ever have to read about their child.The last page stated cause of death which was SIDS.I had no ideal what SIDS was really at the time.One of my friends had lost her son to it a few years beforehand and I was only aware that it had no known cause.

The Aftermath

In the months to follow I became dangerously depressed and this depression swallowed me for close to two years. I recall holding my husband's gun with the agenda of suicide.It felt like people around me alienated me and noone understood what I was trying to handle inside. I had a dream not to long after of lying in a field surrounded by trees.I was dying in the dream and was aware of it.My daughter came out of the woods to me much older close to the age of four.She climbed into my lap and said no more mommy.I woke up crying from it and tried to find anything that could help me.I joined talk groups online,forums,tried talking to my mother which was still heartbroken despite her efforts to help me.I started reading other women's stories about loosing a child and became more aware of all of the people who were struggling with similar emotions.I sat down one day and began writing poetry as an outlet,I always wrote growing up and finished a book of many I wrote not to long ago.I realized that by loosing my baby girl I understood many other people's pain concerning the loss of a child and decided to try and help in anyway I could.That is where this site comes in.

Our Mission

Our mission is to provide education and support for other's who have lost a child.We intend to offer person to person online contact to anyone who is suffering from the aftermath of their loss.Another part of our mission is to list charities that raise money to help further the studies and prevention of child illnesses like SIDS.We intend to provide assistance either by direction or just by listening to other's who need a shoulder.We are not doctors we are just people who are trying to offer a hand and our heart's to other parents of angels.

Copyright 2007, Madison's Hope